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Patient And Family Involvement

IT’S SAFE TO ASK

It’s Safe to Ask is a program developed by the Manitoba Institute for Patient Safety that encourages patients and families to become active participants in their care by asking 3 key questions:

• What is my health problem?

• What do I need to do?

• Why do I need to do this?

MIPS Patient Advisory Committee developed the Patient Advocate Agreement, in English and French, for people who wish to appoint a person(s) to speak up and act on their behalf. MIPS welcomes patient feedback on the program and the form: please contact us.

WE AdVANCE

The Manitoba Institute for Patient Safety and Prairie Mountain Health present We AdVANCE: a documentary film on patient safety.

PROMOTING HEALTH LITERACY

Health literacy is the ability to access, understand, and act on information for health. These resources provide information about health literacy:

• The Canadian Public Health Association’s Examples of Health Literacy in Practice

Vancouver Coastal Health’s video to help health professionals understand health literacy

“What Did the Doctor Say? Improving Health Literacy to Improve Patient Safety”

Literacy Partners of Manitoba

Health Literacy in Canada: A Healthy Understanding

Health Literacy Studies at the Harvard School of Public Health

AHRQ Health Literacy Universal Precautions Toolkit

5 tips for communicating health statistics to patients

GUIDES FOR PATIENTS AND FAMILIES

The Manitoba Institute for Patient Safety is proud to partner with The Canadian Patient Safety Institute and patients and experts from across Canada to develop a new online Guide to offer patients, patient partners, managers, and leaders, guidance and tools to engage in safer care. Designed to be used in all healthcare settings, the Guide brings together the best evidence experience and leading practices on patient engagement.

Engaging Patients in Patient Safety – A Canadian Guide

Many resources are available to help patients and families navigate the health care system and for patients and families to be involved to make care safer.

Tips and Tools for Talking to Your Healthcare Team (Canada)

Inventory for Caregivers in Manitoba (Manitoba)

Caregiving (Manitoba)

Cancer Patient Information and Resource Series (Manitoba)

Choosing Wisely Canada

Patient Engagement Resource Hub (International)

Health Canada’s Advisories, Warnings and Recalls (Health Canada)

MedEffect Canada is a free service to stay informed of advisories, warnings and recalls for health products that Canadians use every day.

International Alliance of Patients’ Organizations  (International)

Joint Commission’s Speak Up (US)

“Be informed” (UK)

PATIENT ASSOCIATIONS

The following patient-led programs are committed to bringing the perspectives of patients and families to healthcare organizations to advance safe healthcare:

Patients for Patient Safety Canada

Patients Canada

Consumers Advancing Patient Safety (US)

Partnership for Patient Safety (US)

ProjectPatientCare.org

FOR HEALTHCARE PROVIDERS

Patient and family-centred care can improve patient safety and quality of care. Many organizations provide resources on how to partner with patients:

• Engaging Patients in Patient Safety – A Canadian Guide – see link and information above in “Guides for Patients and Families”

Institute for Patient and Family-Centered Care

Patient Engagement: Catalyzing Improvement and Innovation in Healthcare (Book, Canada)

Person- and Family-Centered Care (IHI, US)

Engaging Patients and Families in Their Health Care (AHRQ, US)

Patient Engagement and Safety (AHRQ, US)

Guide to Patient and Family Engagement in Hospital Quality and Safety (AHRQ, US)

Led by the Institute for Healthcare Improvement (IHI), Always Events® are aspects of the patient experience that are so important to patients, their care partners, and service users that health care providers must aim to perform them consistently for every individual, every time. For more information on Always Events:

• Video: What is an Always Event

Always Events Toolkit

A Focus on Always Events

Never Events are patient safety incidents that result in serious patient harm or death, and are preventable using organizational checks and balances. Many patient safety and healthcare organizations around the world have developed interventions to target Never Events, including:

• Canadian Patient Safety Institute, Never Events for Hospital Care in Canada

• NHS Improvement, Never Events Policy and Framework (UK)

• AHRQ Patient Safety Network, Never Events (US)

• National Quality Forum, Serious Reportable Events (US)

See also Research on Patient and Family Involvement.